Our lives changed unimaginably when our second son, Charlie, was born. It was a traumatic delivery, which required significant resuscitation and left him severely brain damaged. On top of the grief and the life we had imagined, we were also dealing with the worry of how we were going to manage the specialist care he needs and also how we would cope financially.
I was referred to Haven House and Becki, their family support worker, helped me navigate through and see the wood from the trees. She helped me understand that I could manage this and how we could deal with all the challenges we would face. I was thrown into the unknown and had to quickly learn practicalities of looking after my seriously ill child.
The hospice offered us step down care and holistic therapies which gave us the help and support to find our feet. A play co-ordinator from the hospice visited us regularly to give Dylan some attention so that I could focus on Charlie. Yoga therapy has been especially beneficial for Charlie as he has become more alert, his development has been better and his breathing has improved and overall, he’s been more relaxed.
Haven House have supported every element of our lives really and I don’t think we would be here if we hadn’t had that. I can’t thank them enough.
‘’I’m in awe of the care we have received from Haven House, not only for Charlie, but for me too. They helped in so many ways, when I was tired from a lack of sleep and eased my worries.’’
£16
could pay for a band 5 nurse for an hour to provide expert nursing care to children and young people, including at end of life.
£42
could pay for 2 hours of music therapy to help stimulate a child’s senses, help them to relax and support interaction
£46
could pay for a Clinical Nurse Specialist for an hour, to deliver expert nursing and symptom management care to a child or young person
£179
could pay for a day of play activities including messy play, creating artwork and exploring our specially-adapted sensory room
£519
could pay for a day of Hospice care for a child at home, provided by our nursing care outreach team
£3,264
could pay for 24 hours of care delivered by our specialist care team for every child that needs Haven House